Lucy Grainger said her symptoms were frequently dismissed as menstrual pain or IBS.
A university student tried to kill himself after bungling doctors repeatedly rejected endometriosis and polycystic ovarian syndrome, period pains – for seven years.
Lucy Grainger, 20, claims she was even told by the ambulance, she was “crazy” and “misleading” when she collapsed with crippling stomach pains.
She was only correctly diagnosed with endometriosis and polycystic ovary syndrome (PCOS) weeks after they tried to kill himself last December.
Omron changed doctors and was immediately referred to a private hospital and a gynecologist confirmed she had emergency surgery.
They underwent a three-hour laparoscopic surgery in February and is now recovering at home.
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To raise awareness about the condition, Omron is the writing of a blog and go to the schools to speak with young girls about her experience.
“I am relieved that I finally to be taken seriously,” Grainger, of Yelvertoft, Northamptonshire, said. “For years I was told that I was wrong about my body, that I had nothing to worry about but I was adamant, it was more serious.”
“I was in so much pain I knew it was not normal. It had a huge effect on my mental state and I was so depressed that I tried to commit suicide by self-harm multiple times,” she said. “I don’t remember too much about it, but I remember that I was so desperate. I had missed so much of the university because of the pain and there was no one to listen to me.”
“I remember going to the hospital and be discharged and come home. I changed gp surgeries a couple of weeks later and told the doctor about my history,” she said. “They said ‘right that’s it, we need to figure this out” and referred me to a private hospital.”
“If I had gone on the NHS, I would have been waiting for six months, but within a few weeks the operation is a scan, diagnosed me and sent me to the surgery,” Grainger said. “The costs were covered by the NHS, but I was told that I would have to pay for future operations.”
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“I don’t know if my condition will mean I can have children in the future or not, but time will tell. At the moment I am just trying to get on with my life,” she said.
Grainger, currently in her third year at Lincoln University studying Creative Advertising for the first time saw a doctor when she was suffering excruciating pain in the pelvis at the age of 13.
“I’ve been told that I am ‘crazy’ and ‘delusional’ by doctors, because they can’t figure out what was wrong,” she said. “Nothing ever came up on scans and tests – little did I know, endometriosis is only visible when the operation is finished, so I was just fired and left to go home.”
“This happened too many times for me to count. I was also misdiagnosed with IBS,” she said. “It is the most frustrating thing when you are told that you simply ‘dramatic’ or you’re a ‘drama queen’, because you can’t hack the period pains or IBS.”
“I know my body better than anyone, and I knew that something really wrong is a very long time ago. Sometimes it was so bad that I could no longer walk and had to just lie in bed,” Grainger said. “It was like being stabbed in the pelvis with a knife, over and over again. It does not come and go, it is there every day. The pain that affects me so much, I’m almost left paralyzed. The feeling in my legs go and I’m still not able to walk, a number of days.”
“I have lost count of the number of times that I took Lucy to the GP surgery and the hospital because she was in pain,” Grainger’s mother, Tracey, said.
“The response was always the same, it was period pains or growing pains or Irritable Bowel Syndrome (IBS). The situation should never have got to the stage it did, but nobody listened,” she said. “Because of her age and because I had no history of the condition, everyone thought it was something else.”